Perfil de I choose to dan...I Choose to DanceFotosBlogListas Herramientas Ayuda

Blog


08 diciembre

t minus 8 days

Well here we are kids, close enough to begin counting down, its been a long strange journey indeed.
 
As of a couple of months ago I am clear, but we all know thats just smoke and mirrors at this point. Now begins the long count down to the 6 month mark and beyond.
 
I keep getting the "you look great" line from everyone. The truth is all I see is finally reaching an age when I am comfortable in my skin just to discover my skin is having a schizophrenic episode and I could not recognize me without 3 forms of id.
 
I look and feel 10 yrs older than I did on January 10th, the beginning of this slippery slope of twist and tumble to get me to this day, just shy of a year later.
 
The "holiday's" are upon us and I will be opting out this year, 10 days is not enough time to come up out of the fog and into the cheery ho ho ho spirit. I fell much more like the ghost of christmas past, uuuprfph, ooh, perhaps it is just a bad piece of meat.
 
I am covered in bruises and scabs. I can see all the roots of my teeth. There is no inch of me that is not cracked and itchy, its a beautiful sight I tell you.
 
Somehow in the midst of it all, while out shopping with my daughter 2 weekends ago,  I actually got "hit on", good God I swear the freaks abound. An old, hmm, suppose I could say boyfriend, but actually 4 yr obsession, oh well, anyway, made a comment that I possess, oh how did he say "inherent sexuality", I could have peed my pants laughing. I may sound sexy on the phone, but the only thing feeling sexy on me at the moment is, well, precisely, nothing.
 
I have decided that I will need to spend the entire first quarter of the year cleaning house. I am just sure there are "things" growing in every corner of my home. Laundry alone aught to carry me through to March and perhaps for my 41st birthday I will move on to dust bunnies, actually they are more like dust badgers, even the cats won't go under the bed anymore.
 
And I can barely make it out of it.........
05 noviembre

a little catching up

OK kids I know it's been a while, too many events and emotions to cover them all.
 
Have gone back to work in the office, about 3 weeks now. Could not have imagined how difficult that would be while still on chemo. Getting through the days one at a time though and only have 6 weeks left.
 
Made a few gains in weight, just to lose it all. Not sure if its the stress of being back in the office, now that its a daycare center, or the disruption in my routine. Regardless, down to 97 now. Safety pins and sticky tape are my new fashion accessories.
 
All of this prompted a call to the doc to actually get my labs for the first time since week 12, and guess what, I have cleared. Much mixed emotion about that.
 
One not sure when I cleared so not real sure how long I should continue treatment, not at all confident that I could bear another few months if recommended by the doc. I am beyond ready to re-enter the human race and reestablish my goddess status.
 
Also as some of you well know "clearing" is a bit of a myth and a slippery slope at best. Now comes the long wait to see if I stay cleared after treatment.
 
I read an interesting article today that strongly recommends staying on daily, low,  doses of interferon for up to 6 months after the initial 48 months and or a full 72 months of treatment as being the best shot at staying cleared. Grrrrr 72 months. Frankly I think I could take 72 months of pegasys but the ribivirin has to go.
Well for the moment I need to stay really attached to my, one day at a time, plan. Keep your prayers with me and mine are with all of you.
 
21 agosto

another monday

I do my injections on Monday, what the heck am I thinking you ask. I am blessed enough to work from home, so I decided that if I did my injections on Mondays I would feel best by the weekends. It's all great in theory but at this stage in the game I don't feel fabulous at any time.

There are some days that start out very hopeful and I think I am going to do pretty well so I gear up for some adventures. It generally starts with a trip to the bank or the grocery store, at which point I quickly learn that the most adventure I have energy for is a walk to the mailbox and I have overextended myself the moment I put the keys in the car.

Went to Walmart last weekend, I know, what the hell was I thinking, but I do need to eat. I was there a bit over an hour and made 11 trips to the bathroom. After the first couple I began to alternate between the front/back bathrooms, so as not to draw undue attention. The first question one must ask oneself is what on earth I could have fathomed that I thought I could tackle a place big enough to have a front/rear bathroom.

Those who know be best though will tell you I am creature of bold moves. I felt though, far less than bold and the end of my journey, face sweating, feet numb, guts wretching, head pounding, trying to maneuver my way home, half blind and all stupid. Needless to say that was the end of my adventures for the day, I have warn a permanent butt print in the sofa and at 108 lbs I can tell you it took some commitment.

I don't know what week I am on anymore and have not the energy to surf through my blog to count out from my last log of the date. I have become pretty focused on the date Dec 15th. Its much too far out to begin counting days, but as its well past the 1/2 mark it seems an attainable goal. All and all the time has actually gone by much faster than I contemplated.

At the moment though, as fall is coming on fast and furious, I anticipate these last few months to be of great challenge.

One day at a time Sherrill, one day at a time.......

27 julio

the boo hooers and the clueless

Ok, the title is a bit harsh but fits none the less. Heppers fall in 3 catagories:
 
THE BOO HOOERS: The name speaks for itself, though I have been known to refer to them as the walking dead. It does not matter if they were diagnosed yesterday or 20 yrs ago, they are the doomsayers. Forever lamenting the tragedy of their situation. No doubt on a cornucopia of psyc meds, hate their doctors, damn the world for not being sympathetic enough, slip into regular depressive periods, believe they have a death sentence and live like they have one foot in the grave. You have to be very careful when you find forums or personal support groups filled with these types as they will suck the life out of you while bleeding the life out of themselves.
 
to the boo hooers: get a grip kids, if you choose to continue to wallow in your self pity you will never find out how to live with this disease instead of suffering with it.
 
THE CLUELESS: This is actually my least favorite group of all and I have a very difficult time having patience with this group. I am not talking about the uneducated but eager to learn group. I am referring to those that choose to not educate themselves about their disease and be their own advocates. They trust their doctors to tell them anything they "need to know". They never question what their told, they know nothing about how best care for their own bodies. They rarely seek out the experiences of other heppers and they tend to also be those that drift into the boo hooers.
 
to the clueless: get one real quick kids, this can be a looooong and scary journey when you don't have any idea of what the future holds for you.
 
the third catagory - THE DRAGON SLAYERS: We tend to be a bit waaaay left of center, occasionally a little over zealous. We read all the articles, seek out one another, all over the world,  question everything the doctor says, get involved in advocacy and generally wear out our non heppers with "too much information". We are just as likely as not to bring a subject to the doctor that we know more about than they do. We often take all myriad of supplements that we have carefully researched. We aggressively seek out treatment even when the doc says we don't need it, don't need it, what the hell is that, your not dying you don't need treatment, wow what happened to preventative medicine. We tend to face all of this straight on, with our eyes open, armed to the teeth with a positive attitude and ready to take on anything.
 
to the dragon slayers: give yourself a break every now an again, the burnout factor can be high, exhale often, and try to be kind to the boo hooers and clueless, upon first encounter and then run like hell
10 julio

week 26

Well, kids here we are, injection 26, I think I have been neglecting this blog as it forces me to count down the weeks which I try not to do as there are just too many of them left.
 
My hair is a bit over 1 1/2 inch long and at a really horrible stage, too short to do anything with, too long to leave alone. I have tried every kind of gel, mousse, mud and cannot get it to lay down, if I try to spike it up I look like that little Ween characture, boognish or some silly thing like that its called.

Image Hosted by ImageShack.us

 

I have gotten into an obsessive grocery shopping pattern of buying completely different things every time I go just in desparation of finding something I can taste. I spent a fair amount of time making pork green chili over the weekend to end up w/3 gallons of a food I cannot eat as it tastes horrible though my daughter assures me its the best batch I have made in some time, go figure.

My gums have receeded so much I can see the roots of my teeth, if I have any teeth left at the end of this journey it will be a miracle. All of which will be a bloody shame as I have excellent teeth, had my last and only cavity at age 10, grrrrrr.

We had 8 days of rain in a row which is playing havoc with my pneumonia doc says if my pulse-ox, I think its called, gets any lower they will send me home with a little oxygen tank for crashes and daily maintenance, oh joy.

 

22 vials of dragon juice in the fridge, 22 vials of dragon juice in the fridge, 22 vials of dragon juice in the fridge, take one down pass it around, 22 vials of dragon juice...

04 julio

week 25

Yesterday the doctors office called with my labs, I was a bit surprised that they were open yesterday. My alt's / ast's are perfect, always have been, thyroid, blood counts all good. They did not have my viral load in yet and I advised her I did not want to know.
 
This is the deal, if they're bad I still have 23 weeks to go, if they're good I still have 23 weeks to go. Get it, there just does not seem to be any productive point to knowing at this point. Thats my decision and I'm sticking to it.
 
On a side note, Microsoft/MSN has done it again, I am telling you they could f%#@!! up a wet dream, the bulk of the dates on my blog have converted to Dec 31st, which is interesting in and of itself as I did not start this blog until January. Perhaps after Bill Gates leaves someone will take the reins and get all the screwy to the flat out disfunctional Microsoft garbage fixed, so we can hope..
03 julio

1:48 a.m.

Due to a reduction is serotonin caused by both interferon and ribavirin I find myself wide awake at all hours of the night so here I am.
 
I neglected to make a posting at my 1/2 way mark, week 24 of 48. It seems odd and dishartening to tick them off by weeks or days as there are still so many of them left, thus I think I let week 24 pass right on by.
 
My last labs on Friday had a viral load included, I have been manipulating the lab dept to not run that test as the doc has agreed to let me go 48 weeks no matter what, I really just did not want to know if I am losing or winning this leg of the battle. But alas my brains just plain don't work very well these days and I neglected to advise the lab this time so likely sometime next week I will get the lab call, perhaps I will just not answer the phone until Dec 15th.
 
Last time at the doc my body fat percent was down to 7 which is frankly not all that healthy for women , over 10 is essential to health, 12 to 17 is preferred. I am really not concerned about the body fat but now that almost all the fat is gone the drugs are eating the muscle. I can barely open a ketchup bottle and going up the stairs or getting out of the shower is an excercise of a precarious nature.
 
 
 
 
19 junio

week 23

Injection 23 down, I finally figured out how to inject in my backside fat which is one of the only places left on me with fat that I can use and I have been told to avoid the inside and back of the thigh, something about blood vessels.
 
My weight has stablized, no gain but no more loss. The level of muscle degeneration though concerns me greatly. By the time I am done with this I will be nearly 42 and can only hope I have the motivation to put back together the physique I had, its was my last good asset damn it..
 
I gave up my tanning membership today, can't afford it and can no longer tolerate the uv's at all. I was up until 3:30 this morning with a maddening itch in my feet which were exposed to the sun this weekend and became covered with hives.
 
I need to find a way to get off this new antibiotic the doc gave me for the Perioral Dermatitis as it makes me sick. I mean sick to my stomach, which I have no tolerance for. I don't mind the general nausea that accompanies the pegasys but this med gives me a full on stomach ache.  I can take any other kind of sick, most days, but I have a notorious cast iron stomach and little tummy aches turn me into a full on sissy and with all the other aches I have tips me right over the edge.
 
I think I have the face condition narrowed down to Sodium Lauryl Sulphate and the sun/wind. So I am going to try and drop the meds and see if just avoiding those keeps the condition at bay. Sodium lauryl sulphate is in toothpaste, mouthwashes, many lotions and cosmetics, retin A and almost all soaps.
 
My hair has grown in about an inch maybe an inch 1/2, looks very strange. The color still undoes me, somewhere in between champaign and honey. Hair grows much stranger than I ever thought, I wish I could get a good picture of it but the lighting is all wrong to show all the directions it grows in. The hair on the top actually grows in a crosshatch pattern, with each hair growing left, right, forward, backward or straight up. I have a perfect circle at the dead center crown and all the rest is very one directional. Geez no wonder I used to spend so much time getting to go in any direction.
 
 
 
 
18 junio

today its....

I woke today, dawn broke, dreams faded, I opened my eyes. So what, you say, I do this every day, don't I. I think not, I get up every day and wander through the day, the mechanics of a  day, largely with my eyes closed. Its regurgitation of wrote movement and function, its a method that has worked well for me in times of crisis. Just keep putting one foot in front of the other and each day will turn into another and eventually things will be different than they are.  
 
I am told and mostly feel that I should be grateful for the day, the dawn. I have much to be grateful for and humble for, really I do.
 
I tell myself that I don't live in denial, that I am fully in recognition of my circumstances. That the events and current condition of my life are not a mystery, that cause and effect, choice and concequence can be fully mapped and recorded.
 
I have few regrets as regret is understood but I am often perplexed, by how a seemingly well thought out choice, can result in a completely unintended result and at this juncture my entire life seems to be steeped in conclusions of unintended results.
 
I have a beautiful home, a dream job, the financial means to care for myself and my family, almost,  a car that runs really well, a beautiful healthy child, yes, damn it I have many blessings. To be fair though, if I am the sum of my parts, I am also sick, bald, confused and lonely and am having a very difficult time integrating all of these parts together.
 
I remember I used to be really adept at compartmentalizing all the aspects of my life and personality. I also though used to have venues for all of those aspects. At the moment I am extremely limited in my abilility branch out into those venues. So here I am, trapped in my house and inside my head and its dark and quiet in here.
 
Oozing out of the quiet is an endless haunting whisper of, what if, maybe, perhaps, should be, counld have been. It all has a rancid, tinny, far away sound, yet deafening, as the usual cast of charactures that lives in my head seem to be on haitus.
 
I have no conclusions to this seemingly self serving diatribe, but I am awake now and aware and the nothing seems much too close for comfort so I thought if I perhaps commited it to writing I could squeeze it out of the darkness into the light.
 
its almost working......
 
 
12 junio

prayer for the day

week 22 and nothing new to add but this little prayer:
 
Dear Lord, I thank You for this day. I thank You for my being able to see and to hear this morning. I'm blessed because You are a forgiving  God and an understanding God. You have done so much for me and You keep  on blessing me. Forgive me this day for everything I have done, said or thought that was not pleasing to you.

    I ask now for Your forgiveness.  Please keep me safe from all danger and harm. Help me to start this day  with a new attitude and plenty of  gratitude. Let me make the best of  each and every day to clear my mind so  that I can hear from You. 
 
Please  broaden my mind that I can accept all  things. Let me not whine and  whimper over things I have no control over.
And It's the best response  when I'm pushed beyond my limits.

    I know that when I can't pray, You  listen to my heart. Continue to  use me to do Your will. Continue to  bless me that I may be a blessing to  others. Keep me strong that I may  help the weak... Keep me uplifted that I  may have words of encouragement for others. I pray for those that are lost  and can't find their way. I  pray for those that are misjudged and  misunderstood. I pray for those  who don't know You intimately. I pray for  those that will delete this  without sharing it with others. I pray for those that don't believe.

    But I thank you that I believe. I believe that God changes people and God changes things. I pray for all my sisters and brothers. For each and every family member in their households. I pray for peace, love and joy  in their homes that they are out of debt and all their ! needs are met. I   pray that every eye that reads this knows there is no problem, circumstance, or situation greater than God. Every battle is  in Your hands for You to fight.
   I pray that these words be received into the hearts of every eye that sees it.


05 junio

week 21

Image Hosted by ImageShack.us Here we are in week 21 and the above picture is a damn good representation of how I feel most days. Not a whole lot new. Finally found out what was growing on my face the past 3 months, Perioral Dermatitis but not shingles so wooooo, hooooo. Still hurts like hell and itches like mad, doc said could take several months to heal and could not guarantee it will heal until I get off treatment as my immune systems is so compromised but it actually looks quite a bit much better already and now it only flares up when I get sun or wind on it.

I personally had never heard of this particular disorder and if you have any interest http://www.emedicine.com/derm/topic321.htm.

It's quite a lovely condition with a myriad of suspected causes, thus I have had to purge nearly my entire cosmetic collection of everything that contains:

  • sodium lauryl sulfate: is in nearly every cosmetic product
  • isopropyl myristate: was in nearly all my moisturizers and my retin A - aaugh, looks like I am going to have to get used to those little lines
  • cinnamon flavoring: not fond of cinnamon anyway
  • paraffin: again all moisturizers and sunscreens
  • petrolatum: most dry skin products and all types of balms
  • soap: yea, figure that one out, guess I could just scrub up against a rock to get clean
  • flouride and tarter control toothpastes: uh, huh, baking soda it is, yuck
  • and last but not least and by far the most devastating: sun / wind

So the general gist is by the time I am done with this I will be a dried up old ghostly hag.

My eye brows have grown completely back in, such as they are, all curly and pointing in 6 directions, it quite nicely adds to the troll effect. So I decided to go ahead and try and grow the hair back in, perhaps get 4 or 5 inches before winter. When I first cut it the little 1/8 inch left was blond as could be, upon my second cutting the new growth is very dark, much closer to the color I suspected. I haven't found any greys or whites yet, the pubic hairs are making up for that. Will just have to see how this progresses as time goes on, anyone want to take bets on how long a hair has to get before it lays down??

Received my first real live rent check from my daughter today, woooo, hoooo, in the nick of time to I tell you, its amazing how much an 18 yr old can eat. Yes I did feed her for the first 18 so it should not have come as a suprise, but my budget has been severely dented by the cost of meds and all the subsequent survival products.

My % of meds - $183 monthly

pedialyte - approx 4.83 per bottle - 1 bottle daily

extra vitimins and supplements recommended by docs: approx $160 monthly

4 lab visits a month - $30 a pop

gallons of lotions: the good ones are about 8.30 a bottle

Won't even throw in the nearly $400 I spent on products I now get to throw away that I bought to try and combat this face infection waiting the 3 months to get into the dermatologist.

So thats what about $460 a month, no wonder people opt out of the treatment, even if you have good insurance, few budgets can squeeze in an extra $460 a month and I should be bordering on bankruptcy  by the end of this, oh well, God's on my side and He will provide.

Summer is officially here but between the face condition and the general hives the sun causes, I am nearly banished. I have devised a wonderful method of 10 minute intervals over the course of the day, gives me just enough color to not look like a ghost, keeping face covered at all times. I should look very interesting by the end of summer, tan toosh and pasty white cheeks, of course no one cares what my toosh is doing these days anyway.

Well, that's as much update as I have today.....

08 mayo

week 17

Image Hosted by ImageShack.us
 
 
 
Ok its week 17, not much new around here. Kid moved home again, could not emphasize enough to her it better be temporary. Oh well didn't think the boyfriend thing was going to fly for long anyway. A bit beyond my rhelm of comprehension though that she let him ask her to move out and stayed with him. My oh my where did I go wrong, kick that boy to the curb I say, I obviously failed some where.
 
Dryer quit today, oh joy, I can see it now, clothes racks set up all over the house. Damn good thing its dry here or it would take days to dry. Perhaps I could run a big pole up the roof and wind dry everything as we are in the midst of a Rocky Mountain spring with wind every afternoon.
 
Had to kick the cats out of the cat room as the girl is allergic. Grrrr, love her dearly but damn inconvenient at this juncture.
 
Don't have any new or worsening symptoms, thats a bonus, just settling into the ones I have, geee wonder if I will have some sort of separation anxiety from all the squishies after 48 weeks, too far away to comtemplate.
 
Been trying to work out more, can't manage much but I do feel a bit stronger. Wish the darn weather would warm up, with my head bald its too chilly to walk with the wind blaring across my scalp, discovered hats itch too much.
 
 
23 abril

just in case you have forgotten

I have had a strange series of encounters over the past few days that seem to warrant that everyone be reminded what my current physical condition is:
 
body aches - all the time
fever - mornings
joint pain - all the time
severe muscle cramps - will wake you up out of a dead sleep, or drop you in mid step
chest pains - will scare the hell out of you
strange pains in all organs - I'm told its normal
bowl conditions - will leave it at that
blazing headaches - much of the time
pneumonia - mornings and late night the worst
impetigo - millions of little itchy spots all over my face and body
severe fatigue - severe, thats drag the vacuume up the stairs and need a nap, literally
weakness in all muscles - thats cannot open a ketchup bottle, can barely lift a grocery bag
skin lesions - their quite lovely and they hurt
lesions in my mouth - hurt like hell
hair loss - opted out of watching it any longer, shaved head, necessity, not a fashion statement
sleep disorders - so tired I cannot lift a glass to my mouth but cannot fall asleep
blurred vision - comes and goes - driving is a peril
reduced cognative abilities - I space out a lot, driving is a peril
general diminished mental capacity - I am generally a blithering idiot, all my remaining brain goes to my job, after that its a crap shoot
weight loss - so far 16 lbs - riiiight, try to imagine it
lack of appetite - force feed every few hours
lack of ability to taste food - doesn't matter what I eat I can't taste it
severe sensivity to light, sound, smells - like being on acid, if you have never tried it sorry I can't explain it
deep all over body itch - maddening
shortness of breath - makes any task difficult
dizzy spells - tend to crawl up the stairs on all 4's for fear of passing out and falling
 
I am still making every effort to smile and laugh through all of this but the following should be avoided:
 
a) asking me silly questions that are not relevant to the next 5 minutes, thats all the further ahead I can think
b) inviting me to parties and being offended when I pass
c) expecting me to remember birthdays, holidays or events of any type
d) expecting any kind of real empathy out of me for your daily little life dramas, I still care I just don't have the energy to participate
e) expecting me to give a rats ass about what you think I look like, smell like or behave like
f) expecting me to live on anyones agenda but mine, do it my way or my way
g) do not look at me like I am an idiot when I cannot carry on a witty conversation, I can barely form thoughts
h) do not ask me to make decisions about anything, I am not capable
i) don't call me 12 times in a row, if I don't answer I am asleep, several times a day, sometimes all day, I will get back to you when I get to it
 
 
All of this is fair and fore warning, until December 15th 2006, there will be no expectations of any kind received by me with anything but, pffffft!!!!!!!!!  What I need is patience, help of any kind and nothing but words of encouragment and any humor you can throw my way.
 
I am unwell beyond your wildest imaginings, try real hard to get your head around it, my whole life is about what bodily function is not working or hyper working at any given moment everything else is irrelevant..........
 
21 abril

the votes are in

hey mom
    it looks awesome. time to got ur nose pierced and stop wearing shoes. dreams will come true.
love ya miss ya
boo
 
Well, I can't honestly say that I love it, but you have a great shaped head, so it looks cool.  I hope you'll go for the spikey look as it gets a little longer.  I've seen some really great spikey hairdos. 
 
mom 
 
You always look good, no matter what you do!

I've always thought you were beautiful!

Love ya!
Linda

That's the sexiest thing I have seen all year crazy lady, only you.
 
Love ya, Mark
 
Looks FAbulous Sweetie.
Marian 
 
Looks good maybe a new fashion trend
rich

Only you could wear it that well : )

kara

oooo baby!!!!!
 dinner this weekend?

brian

 

Well I think you look marvelous. Now you can be ready in minutes. No blow dryer, curling iron, hair spray, spritzer  but you do look like a rock star. Yes it must be liberating. Do your cats recognize you?

What's a little hair, I bet you still stop traffic
michele

 

You rat! I wanted to do it with ya. You look good! Was new?  :)
ric

 

 I like bald chicks.

stanton

 

Man, way cool! You look great, no seriously, your very fortunate, no way I'd ever look that good bald, however with my hair I'd probably would be able to stand up better without it  

barb

 

Wow . . . . . ok, I remember the red, red hair . . . the
blonde boomshell . . . . this is cool.  WELL, your head
looks like mine - - - - copycat.

HUGS

Chuck

 

I think you look great and salute you! Here in the bay area, there are bald hotties of both sexes abounding.
bev



 

Hell, if I looked that great without hair... I'd keep it shaved off... LOL

Girl... You ROCK!

Hugs,
T

 

AND ONE DESSENTING VOTE:  

 

Your so crazy Sherril! You definately dont look like a troll honey so get a wig. A crew cut just isnt feminine. Do you like rubbing it?

 BROCK


 


 
 
19 abril

might as well share, warning

Image Hosted by ImageShack.us



Pretty damn scarry huh.........

 

the beauty is though I can go anywhere ingognito these days

somewhere in week 14

Not feeling too bad this week, not dazzling by any stretch, but not horrible either. Perhaps a little extra gust of wind created by my success getting to swirl in this abyss another 35 weeks. At least it gives me an opportunity give this battle a full on go.
 
Weather here is finally turning to spring, though its the worse time of year hear in Rocky Mountain wonderland. Can easily be 80 one day and 35 the next, occasionally all in the same day if you get really lucky. Not natural to live in a place where you can get all 4 seasons in one day. You need two closets just so you can keep all seasons clothes out all year.
 
Ok, never thought I would be one of those people that would blog about cats and I will not go on and on. I must though reiterate what a nut case I must have been when I got these cats. One of them is a demon from hell in disguise who's sole mission in life is to drive me insane. God must surely have decided the teenager was not enough torture for one lifetime.
 
Each day seems a new set of physical challenges, but overall I am still faring with some humor still in tact. I spent the better part of 30 minutes of an evening trying to extract the lid from a can of oven cleaner. You know one of those ones you have to squeeze both sides of to open, I have the strength of a moth at the moment. My final solution was to jam it in the door, pressing my body against the door and pulling on the can. You can guess the result when the lid did come off, me tumbling across the hall, can in hand. Just to discover upon the very first spray that with my hypersensitive Interferon nose I nearly gagged to death and had to open all the windows, never got past that first spray, a job for next winter.
 
Well, tomorrow is another day for new absurd adventures....
 
 
14 abril

the gods are with me kids

Image Hosted by ImageShack.us

Well results in, current viral load 86,000 down from 1,300,000. Not "0" by any strech but with a bit of cajoling doc has agreed to let me continue, weeee, another, now 35 weeks, of this joyous adventure.
 
Pneumonia is subsiding a bit but impetigo is accelerating, really look like a troll now.
 
Hair is beginning to shed a bit, if it gets much worse, shaving will commense, before I lose too much, to donate to the childrens cancer center.
 
Mixed emotions as thought, phew, dig in heels, present arms, the whole arsenal, dirty dragon, here I come.
 
Told that wretched beast, God and I had a plan, so there you have it......
07 abril

d-day labs

Well, d-day labs done, now just hurry up and wait.
 
Mixed feelings as usual, end, it here and get my life back, such as it was, or 34 more weeks of this and then still have yrs to wait to see if the dragon stays at bay.
 
Pneumonia subsiding a bit, perhaps just the better weather. impetigo from head to toe, don't know if the skin on my face will ever recover, oh well, kept waiting for my looks to go so I could get on with a life unencumbered by fatal attractions.
 
Fatigue increasing but red and whites still at good levels, perhaps just a tolerance issue. Cats knocked over a 6 gallon potted plant, think I will just leave the dirt on the floor and plant the greens there, surely easier than dragging the vaccume cleaner out.
 
I am going to look damn glamorous if my hair makes it to my waist and my eye brows and eylashes don't grow back, will have to get that nose piercing then as it will be the only decoration on my face.
 
Moved my weight bench back inside, had all the best intentions but alas nearly crushed myself to death upon first attempt, volunteers welcome for spotting.
 
 
 
 
05 abril

THANK YOU ZOE

Image Hosted by ImageShack.us



THANK YOU ZOE FOR YOUR ENCOURAGEMENT, PLEASE LET ME KNOW IF THERE IS A WAY I CAN CONTACT YOU FOR A MORE PERSONAL THANK YOU AS I DON'T SEE A LINK FROM YOUR COMMENT..